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Information and Resources Related to COVID-19

Coronavirus Disease 2019 (COVID-19) CDC imageAcross the world, we are experiencing an unprecedented set of challenges as we all work together to prevent the spread of COVID-19 through social distancing and other protective measures. Having reliable, up to date information and resources to help us better understand COVID-19, necessary health and hygiene precautions, and strategies to maintain emotional well-being is important to us all. 

 
The Boggs Center, as New Jersey’s federally designated University Center for Excellence in Developmental Disabilities (UCEDD) and New Jersey’s Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, has compiled a selection of resources from New Jersey and across the country that may be useful to the disability community across the state.  The links to some of these resources can be found below.

 

COVID-19 National & State Resources

 

Centers for Disease Control and Prevention (English) (Spanish)

 

Administration for Community Living – COVID-19: What Do Older Adults and People with Disabilities Need to Know? (English) (Spanish)


New Jersey COVID-19 Information HUB

 

New Jersey Department of Human Services Novel Coronavirus Information

 

Plain Language and Accessible Information

 

COVID-19 Information By and For People with Disabilities (English) (Spanish) – Green Mountain Self Advocates

 

COVID-19 Explanation: Plain Language Video – Developed by the Oregon Office of Developmental Disabilities Services 

 

Do You Know Your Rights with COVID-19? - Resource developed by the Center for Dignity in Healthcare for People with Disabilities providing information to people with disabilities about advocating for rights

 

Resources for the Deaf and Hard of Hearing Community - Resources compiled by Public Health Insider - Seattle and King County

 

Healthcare & Communication Resources

 

Supporting Communication with Patients who have COVID-19 – Developed by the Patient Provider Communication Forum to help healthcare professionals communicate with those with limited speech, use alternate means of communication, or may be intubated

 

Communication Rights ToolkitResource developed by Communication First about communication rights and accommodations in healthcare settings including a communication accommodation needs document to complete and share with healthcare practitioners.

 

Safeguard Against Disability Discrimination During COVID-19: Fact Sheet for Healthcare Professionals – Resource developed by the Center for Dignity in Healthcare for People with Disabilities providing information about including individuals with disabilities in the COVID-19 response to ensure equitable care

 

Resources in Support of Physical & Emotional Well-Being and Mental Health

 

Using the Integrated Supports Star to Identify Connections – The Boggs Center collaborates with the NJ Division of Developmental Disabilities and NJ Council on Developmental Disabilities in the Implementation of the Charting the Lifecourse Framework and participation in the national Community of Practice for Supporting Families. As part of this partnership, this resource was developed to introduce people and families to how they can use the Integrated Supports Star to identify supports and ways to stay connected during the COVID-19 pandemic.

 

Self-Care Resources – Compiled by the Michigan Developmental Disabilities Institute at Wayne State University

 

NJ Mental Health Cares – 866-202-HELP (4357) TTY: 1-877-294-4356

 

NJ Hopeline LiveChat – 1-855-654-6735

 

2nd Floor NJ Youth HelpLine – phone and text 888-222-2228   

 

Supporting Individuals with Autism through Uncertain Times – Developed by the UNC Frank Porter Graham Child Development Institute 

 

Eat Right.  Academy of Nutrition and Dietetics - Coronavirus related information to support health with good nutrition

 

National Alliance for Direct Support Professionals – Resources for DSPs Taking Care of Themselves in Crisis  

 

Employment & Financial Related Resources

Employment and Assistance Resources for NJ Community College Students and Community Members Affected by the Coronavirus – The NJ Council of Community Colleges compiled this list of useful resources to help people find employment, learn about unemployment benefits and economic assistance for businesses, and connect with other means of assistance

National Disability Institute (NDI) Financial Resilience Center – Provides resources and assistance to help people with disabilities and chronic health conditions navigate financially through the COVID-19 crisis

Boggs Center Resources about Grief and Loss

 

Someone once observed, “All grief is like all other grief, some other grief, no other grief.” This is universally true but no more so than in the lived reality of persons with intellectual and developmental disabilities (IDD). While there is general information available on grief and loss from a wide variety of sources, information pertaining to the sometimes unique complexities of mourning for a person with IDD can be harder to find. Below are some resources that may prove helpful as you strive to compassionately support people in your life who are experiencing loss and processing grief.

 

Responding to Grief Reactions of People with Intellectual and Developmental Disabilities

 

Ritualizing Grief with People with Intellectual and Developmental Disabilities

 

Resources: Intellectual/Developmental Disabilities and Grief, Death, & Dying

 

Helping People with Intellectual and Developmental Disabilities Process Grief

 

Boggs Center Resources about Supported Employment

From the emergence of the remote workforce to those who are showing up every day in our state’s essential industries, the employment landscape is experiencing rapid change during the time of COVID-19. The Boggs Center is pleased to provide two new resources to assist employment specialists, as well as people with disabilities and their supports, to navigate these unchartered waters. During times of crisis, there can seem an overwhelming amount of information that one must sift through.

Supported Employment COVID-19 Resources - Includes a list of resources that has been curated to focus on the most critical employment issues at this time  

 

Employment Risk Assessment - Risk assessment which was created to help job seekers and their supports to identify and consider the benefits and the risks of employment in the field during this unprecedented time

 

Boggs Center Resources about Planning for Emergencies

 

Across the world, we are experiencing an unprecedented set of challenges related to the spread of COVID-19. While planning for emergency situations has always been important, the COVID-19 pandemic has made the need to plan more urgent. The Boggs Center on Developmental Disabilities developed Planning Ahead for When the “What If” is Now to help people with developmental disabilities and their families plan for emergency situations when a primary caregiver is not able to provide support due to illness, injury, quarantine, hospitalization, or death. Planning ahead increases the likelihood support provided in an emergency situation respects a person’s wishes and best meets their needs.

Planning Ahead for When the “What If” is Now: Emergency Planning for When a Primary Caregiver is Not Able to Provide Support

Resources About Face Masks

The Boggs Center on Developmental Disabilities and Children’s Specialized Hospital have developed a series of resources to help children understand and feel comfortable wearing face masks. The series includes:

A Parent’s Guide: Helping Your Child Wear a Face Mask - (English) (Spanish)

Help Your Child Feel Good about Using and Seeing Others Wearing Face Masks - (English) (Spanish)

I Can Stay Healthy by Wearing a Face Mask - (English) (Spanish)

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