Department of Pediatrics
A University Center for Excellence in Developmental Disabilities Education, Research, and Service
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Guidebook for beneficiaries of Medicaid Managed Care in New Jersey. Includes chapters on 1) What is Managed Care and How Does it Work? 2) How to Use Managed Care; 3) Tips on Improving Your Health Care and Being Healthy; 4) What You Can Do If You Have Problems and Concerns About Your Doctor, Your Health Care, or Your HMO; Glossary; My Important Information; and Sources of Help.
Developed by The Elizabeth M. Boggs Center on Developmental Disabilities, UMDNJ-Robert Wood Johnson Medical School and The State of New Jersey, Department of Human Services, Division of Medical Assistance and Health Services. Available in English and Spanish 2002, 2011. 52 pages. |
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The purpose of this guide is to teach young adults with disabilities how to become strong self-advocates for their own health and health care. The guide includes activities, worksheets, and tips for communicating effectively with health care providers, keeping track of personal health information, and figuring out what supports will help each individual make the health-related choices that are right for him or her. Available in English and Spanish 2010. 28 pages. Order print copies from The Boggs Center A limited number of CDs with audio and PDF files in English and Spanish are available. Contact Kathy Roberson for more information. |
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This resource helps people deal with death, loss and the process of grief by showing how people support and nurture each other. The story describes the responses of staff, family, neighbors and individuals in a group home after a sudden death of an individual with a developmental disability. Other sections include: Reflection and/or Discussion Questions, Practical Strategies for Dealing with Loss, Death, and Grief, Activity Book, Game, and Bibliography. The resource can be used as one complete package or as individual sections. Written by Boggs Center Trainee, Melody Steinman. 2006. 90 pages. Available online only. |
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This educational pamphlet describes Organ transplants for People with Disabilities; How to Advocate for Your Child; Important Things to Know about Transplantation; How to Talk to Your Child about Transplant; Medication and Diet; Tools to Detect When Your Child is in Pain; Family and Self-Care; School Programs; The Federal Law; Transplant Terms; and Useful Websites. Written by Boggs Center Trainee, Caroline Marks. |
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